Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy, is a rare and catastrophic form of epilepsy for which there is currently no cure. Seizures begin in the first year of life in an otherwise typically developing infant. All seizure types are remarkably resistant to medical therapy. Developmental delays often appear during the second year of life, although the course of severity varies among affected children.

April2012
A musical benefit was held to help raise funs to cover Trystyn’s rising medical costs. Her big sister put together a video to be played at the benefit. This is it.
Trystyn’s Story